Please take this important survey developed by Hyperacusis Research LTD. Results will be presented to clinicians at the University of Iowa conference in June 2019. It should take about 12 minutes to complete.
Please help the University of Aix-Marseille in France with their hyperacusis survey. The survey has now been translated into English!
The questionnaire is entitled: “Characterization and evaluation of tinnitus and hyperacusis, as well as various potentially associated symptoms.”
It will take between 20 and 30 minutes and must be completed in one session. It is not possible to close the survey and finish it later, so plan accordingly!
The online questionnaire is here:
ENT & Audiology news is featuring hyperacusis in its early 2019 issue. There are several good articles regarding the latest hyperacusis research including from researchers at SUNY at Buffalo. There is also an update from the CORDS patient survey that provides some insight into an often overlooked yet highly relevant aspect of hyperacusis; setbacks.
Unravelling the mystery of hyperacusis with pain
By Bryan Pollard
Physiological mechanisms of hyperacusis: an update
By Benjamin D Auerbach
The James Lind Alliance has posted a survey to take your questions and present them to researchers and clinicians. This is a priority setting partnership (PSP) that gives patients an equal voice to clinicians in determining the top 10 pressing needs in research. You can participate by clicking the link below and submitting what you feel needs more attention in hyperacusis research:
A similar priority setting partnership was done for tinnitus. The process was described as follows
- Harvesting questionnaire launch (see link above for hyperacusis questionnaire)
- Harvesting questionnaire classification and sorting.
- Ranking questionnaire (ranking questions submitted in harvesting questionnaire)
- Ranking questionnaire classification and sorting
- Prioritization meeting (a group of 50% clinicians and 50% patients negotiate the top 10 pressing items for research)
A summary of the results of a parallel effort for tinnitus can be found by using the link below:
Tinnitus Priority Setting Summary
A recent study has found that high noise levels result in the upregulation of genes responsible for inflammation and pain in the cochlear nucleus (low level auditory brain). The study was performed at the University of Buffalo and is an indirect product of the lobbying of Hyperacusis Research. One of this paper’s authors, Dr. Salvi, is a scientific advisor at Hyperacusis Research. Donate to Hyperacusis Research to help fund more studies like these.
“In the pain and inflammatory array, noise exposure upregulated mRNA expression levels of four pain/inflammatory genes, Tlr2, Oprd1, Kcnq3 and Ntrk1 and decreased mRNA expression levels of two more genes, Ccl12 and Il1β. Pain/inflammatory gene expression changes via Ntrk1 signaling may induce sterile inflammation, neuropathic pain, microglial activation and migration of nerve fibers from the trigeminal, cuneate and vestibular nuclei into the CN. These changes could contribute to somatic tinnitus, hyperacusis and otalgia.”
The University of Iowa will be having their 24th annual conference on tinnitus and hyperacusis July 16-17, 2016. Both health care professionals and patients are welcome. The first author of the hyperacusis literature review, Dr. Richard Tyler, will be presenting on treatments for loudness and annoyance hyperacusis. Details about the conference and registration can be found here.
A thorough review of the 2015 International Conference on Hyperacusis has been published by the Hyperacusis Research foundation. Dr. Iver Juster gives his take on the conference including its urban location, attention to patient feedback, and researcher presentations. It is a good read. http://hyperacusisresearch.org/hyperacusis-ich2-report/
Hyperacusis research needs more participants for their hyperacusis survey. Much can be learned from the results of the survey. Examples include:
- Symptoms vs Severity
- Setback characteristics
- Predisposing Factors
- Connections to other medical conditions
- And much more
Please take the survey by following these instructions.
“Hyperacusis Research is excited to fund two Emerging Research Grants for the Hearing Health Foundation’s 2015 grant cycle. The first grant covers the important topic of pain mechanisms associated with hyperacusis while the second grant investigates mechanisms associated with moderate noise-induced damage and its effects on the auditory system. We are extremely grateful for our donor support which made possible the support of a second grant in 2015 as we had initially only planned on supporting one Emerging Research Grant for this cycle…”
More detail: http://hyperacusisresearch.org/two-research-grants/
A startup called Decibel Therapeutics has been formed to focus on discovering and developing new medicines to protect, repair and restore hearing. Their first program will involve an antibody to help grow neurites (a portion of the nerve that extends to other nerves). Charles Liberman, a renowned Harvard researcher who has directly and indirectly contributed to Hyperacusis research, is a founding member. Related research of his on hidden hearing loss found neurotrophins can help restore damage of the auditory nerve.
From hyperacusisresearch.org facebook page